Patients as a key stakeholder for scientific conferences

In this episode of Informed, guest host Dawn Lobban is joined by Simon Stones, an experienced patient advocate and senior medical writer. They discuss the topic of patients at scientific congresses and conferences. Simon shares his journey of being diagnosed with juvenile arthritis and inflammatory bowel disease as a child, which inspired him to learn about his conditions and work to help others by amplifying the patient voice in research. Tune in to gain insights into the why, how, and where of patient involvement in scientific congresses – what it looks like now and what it could be in the future. Guest host Dawn Lobban, Medical and Patient Engagement Consultant is joined by Simon Stones, Senior Medical Writer, Envision Pharma Group for this episode of InformED.

If you enjoyed this podcast, please watch the related ISMPP U titled Patients in Focus: Redefining Scientific Conference Dynamics found on our ISMPP U and eLearning site, https://www.pathlms.com/ismpp/courses/60368. ISMPP U’s are free to members.

Produced by ISMPP (International Society for Medical Publication Professionals), in partnership with Evergreen Podcasts. The views expressed in this recording are those of the individuals and do not necessarily reflect the opinions of ISMPP or the companies or institutions with which they are affiliated. This presentation is for informational purposes only and is not intended as legal or regulatory advice. Special Thanks to the University of Pittsburgh Journal of Healthcare Informatics Research ACL (Association of Computational Linguistics) AMIA (American Medical Informatics Association). Thank you for listening to InformED! Please subscribe to the show on your favorite podcast app and rate our show highly if you enjoyed it. For more information, visit ismpp.org.