Senior Data Officer, AVP, Translational Science

The Foundation for the National Institute of Health (FNIH) is seeking a Senior Data Officer (SDO), an executive role responsible for helping to establish and lead the organizations data strategy, governance, and infrastructure to ensure that data is a trusted, secure, and high-value asset across all programs and partnerships.

The SDO will oversee scalable data systems that enable high-quality data integration, access, and reuse across a diverse portfolio of scientific partnerships and research initiatives. This includes assisting in the oversight of Data COUNTS, the organizations role in serving as the trusted broker for NIHs federated electronic health record (EHR) data platform.

Working closely with scientific, technology, and partnership leaders, the SDO will ensure that data across the organization is standardized/harmonized, governed, secure, and accessibleenabling downstream use in research, clinical development, regulatory engagement, and publicprivate collaborations.

This position will report to the Senior Vice President of Translational Science within the Science Partnerships department (or their designated report) and is based at the FNIH offices located in North Bethesda, MD.

Key Responsibilities

Enterprise Data Strategy

• Help define and lead the organizations enterprise data strategy aligned with mission, scientific priorities, and growth objectives

• Position data as a strategic asset to support research, partnerships, and organizational decision-making

• Establish long-term roadmaps for data infrastructure, interoperability, and scalability

• Develop and implement enterprise-wide data governance frameworks, including data standards, quality, access, and lifecycle management

• Ensure the FNIH owned data is in compliance with privacy, security, and regulatory requireme